August Was Moving Month

-
Image
It's been a while since I have put up a blog post. I also haven't been very active on Faith's Mom's Facebook page. That's because the month of August was dedicated to moving!  About 4 years ago, Faith and I moved from the apartment she grew up in, to a different one in northeast Bismarck. The primary reason for the move was to have underground parking so that getting her loaded into the van by myself during our cold, snowy winters would be less of a challenge. We also needed to find a place in which the elevator didn't break down on a regular basis!  One of our last sunsets at our old apartment  That place served us well, but the drive to her day program, which is located across the river in Mandan was time consuming, not to mention, expensive. I drove about 45 miles a day and used up a tank of gas a week!  Searching for a New Place  Before our lease ended, I began praying about finding somewhere else to live. A condo would have been nice, but surprisingly not a...
Post a Comment

Making Some Progress at School

-
We recently received Faith's report card of sorts called, "Annual Goals, Short-Term Objectives, and Periodic Review of Services." Which basically lets us know how Faith is doing with her therapies and special education/academics at school. These are the goals that we set up for her at the beginning of the year when we did her Individual Education Plan (IEP).
 
Getting ready for school
 
I was so happy to see that in each area, she is making "some progress." In occupational therapy, they have been working on self-feeding. This has been a challenge for her as it involves fine motor skills. She does have high tone in her arms, so she has to work through that in order to bring the spoon directly to her mouth. Her therapist in this area says that Faith fatigues during this exercise, but that she is really motivated to work hard.

One of our goals is for Faith to begin to read. I am so proud of her that she knows all of her letter sounds and at school they are trying to get her to recognize her first set of sight words. 

Faith is more auditory than visual so one thing they are doing to help her learn to read is to mount a laptop computer to her chair. The computer has all of the reading materials that her class uses which enables her to not only see the text but to hear it as well. She is then able to push her buttons to turn the pages on her own.

Another area she is working on is physical therapy which involves walking in her gait trainer and also driving her power chair. Her goal is to drive from her classroom to the gym in as fast as time as possible, with the least number of stops. There are a few times she has gone the whole distance without any stops! Another improvement she has made is that she no longer just drives around in circles!

Besides all of these activities, she also has speech, time in her stander, computer lab, library, music, and time in her classroom. What a busy little girl she is! No wonder she doesn't want to do anything or go anywhere when she gets home!

I am so thankful for all of the help that Faith receives at school and that each person there is doing their best to help Faith reach her fullest potential. I am so proud of her! 

Comments

Post a Comment

Most Popular Posts

Cari's Cardiology Update

-
Image
Normally, Faith is the one with all of the appointments but this week it has been my turn. On Monday I had my annual echocardiogram. On Tuesday I had my pacemaker device check and appointment with the cardiologist who comes to Bismarck from the Mayo Clinic in Rochester, MN.  The doctors who come are pediatric cardiologists who also specialize in adults with congenital heart defects (CHD). This saves anyone in the area who has a CHD from having to travel to Rochester each year. It is very convenient! (I do travel to Rochester to get my pacemaker changed, though!)  The Bible verse that has kept me going all these years! When I saw the doctor, we mainly discussed two things: my Fontan and my pacemaker. But first, a little background. I was born with double outlet right ventricle (DORV). Basically, this means both my aorta and pulmonary artery stem from my right ventricle. Because of this, my left ventricle does not really do anything, which is why this CHD is referred to as a sin...
Read more

Faith Turns 21!

-
Image
Faith's 21st birthday was on Friday the 25th and it ended up being an all-day celebration! She didn't sleep well the night before, so I was a little concerned she would run out of steam, but she just kept going! It ended up being a beautiful fall day, so I didn't even need to put a jacket on her, which is rare for the end of October.  Faith in her new birthday shirt!  This year, she was able to bring cupcakes to HIT. Last year, due to the dietary restrictions of her peers, she didn't bring any treats. This year, however, she is a new room, where they truly love their snacks! After I dropped her off, I raced around like a maniac getting her ballons, presents, and everything else ready for the surprise party we would be having at the end of the day.  Faith with some of her staff making a cupcake delivery.  When I picked her up from her day program, I informed her that some friends of mine that I worked with wanted to give her a special birthday treat. So, we made our w...
Read more

My Tetanus Shot Ordeal: A Real Pain in the Arm

-
Image
Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm.  The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. My arm is still red and sore on day 2 after my tetanus shot. On Friday, two days after getting the shot I felt so tired that I took a four-hour nap after getting Faith off to school. Then on Saturday I took a three-hour nap up until 7 o'clock, but still felt tired and was able to go back to sleep around 10. ...
Read more

Faith's New Van

-
Image
Finally, on November 4th, the day the elevator in our building was fixed, I was able to take Faith downstairs so she could check out her new van! It happened to be a beautiful day, close to 80 degrees, which is rare for North Dakota in November. We had respite care that day, so I had her record me getting Faith loaded up for the first time.   Faith is all smiles about her new van! Faith is ready to roll! After loading her up, the three of us went for a fun drive including a trip through McDonald's so Faith could get a chocolate chip cookie. Faith was having so much fun as we drove around.  She kept randomly shouting out things like, "Happy Birthday!" and "Merry Christmas!" (I am looking forward to driving around and looking at Christmas lights with her this year!) I guess she really does think her van is the best gift ever!  Faith inside the van. Earlier this week, we used the van to take her to an appointment with the general surgeon. She wanted to check Faith...
Read more